Taylor is a solution-driven patient advocacy consultant with over ten years of experience in championing the needs of the rare disease community and serving as an intermediary between patients, researchers, and industry. She is uniquely situated to develop patient-centric strategies and initiatives for both internal and external advocacy relations, and maintains strong relationships with a vast global network of patient leaders and industry professionals. Taylor works with both for-profit and nonprofit organizations in the United States and Europe, with a focus on helping drug developers, genomics companies, and research organizations connect most effectively with the patient communities they seek to serve.
Consulting Services
Developing patient engagement and outreach strategies
I'm excited to share that I have been formally appointed by the Office of the Governor to New Jersey's newly established Rare Disease Advisory Council!
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The New Jersey Rare Disease Advisory Council is part of the the Department of Health and works to advise the Legislature, State departments, agencies, commissions, and authorities, and private agencies providing services for persons diagnosed with a rare disease.
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Amplifier Award - Hemophilia Federation of America (Apr 2022)
20 Rare Disease Champions to Know - Global Shakers (February 2020)
Undergraduate Prize For Feminist Scholarship - The George Washington University Women's, Gender, and Sexuality Studies Program (May 2019)