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Media

Journal Articles

Honors

  • Member of New Jersey Rare Disease Advisory Council

  • Amplifier Award - Hemophilia Federation of America (Apr 2022)

  • 20 Rare Disease Champions to Know - Global Shakers (February 2020)

  • Undergraduate Prize For Feminist Scholarship - The George Washington University Women's, Gender, and Sexuality Studies Program (May 2019)

  • Rare Voice Award (Teen Advocacy/State) - Rare Disease Legislative Advocates (November 2017)

  • RARE Champion of Hope (Teen Advocacy) - Global Genes (September 2017)

  • Volunteer of the Year - Kennedy Krieger Institute (May 2017)

  • Hero of the Year - National Association of Women Business Owners-South Jersey Division (February 2017)

  • Community Contribution Award - Educational Research Center of America (October 2016)

  • Young Women in Public Affairs Award - Zonta International/Trenton NJ Division (April 2015)

  • New Jersey State Governor’s Jefferson Award for Public Service,Youth In Service - Jefferson Awards (June 2014)

Podcast Appearances

Publications

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Features

"Remember the Girls: Driving Awareness of Female Carriers of X-Linked Rare Diseases"
Rare Disease Advisor
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"Rare Like Her"
SJ Magazine

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"NIH Panel Features Experiences of Young Adults in Rare Disease Community"
AJMC Newsroom
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"The X-Factor: Understanding X-Linked Conditions and the Women Who Carry Them"
The Smith Family Clinic for Genomic Medicine
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"Student group organizes first-ever rare disease awareness week"
GW Hatchet

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"Girl Power Profile: Taylor Kane - The Girl Who Changed the Dictionary"
SJ Magazine
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"Remember The Girls empowers women affected by X-linked conditions"
Immune Deficiency Foundation
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"Students with personal ties to rare illnesses launch new student group"
GW Hatchet
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"Local activist redefining her world"
Courier Post
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