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10 Years In The Making: New Jersey Begins Screening Newborns for ALD
As of yesterday, December 5th, the state of New Jersey finally began screening newborns for ALD! This extremely important milestone has...

taylorkane
Dec 6, 20223 min read
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Public Testimony: NSARC Virtual Meeting
Today I along with other ALD advocates Jesse Torrey and Miranda McAuliffe presented testimony at the New Jersey Newborn Screening...

taylorkane
May 17, 20223 min read
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Public Testimony: Expanded Carrier Screening
Today, I had the opportunity to give public testimony in front of the Oregon Health Authority's Value-based Benefits Subcommittee (VbBS)...

taylorkane
Jan 21, 20213 min read
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What People Get Wrong About Childhood Grief
My dad died when I was in kindergarten, four days before my fifth Christmas. For the previous two years, I had watched my dad’s body and...

taylorkane
Aug 26, 20202 min read
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