Blog | Taylor Kane

10 Years In The Making: New Jersey Begins Screening Newborns for ALD

As of yesterday, December 5th, the state of New Jersey finally began screening newborns for ALD! This extremely important milestone has...

Public Testimony: NSARC Virtual Meeting

Today I along with other ALD advocates Jesse Torrey and Miranda McAuliffe presented testimony at the New Jersey Newborn Screening...

Public Testimony: Expanded Carrier Screening

Today, I had the opportunity to give public testimony in front of the Oregon Health Authority's Value-based Benefits Subcommittee (VbBS)...

What People Get Wrong About Childhood Grief

My dad died when I was in kindergarten, four days before my fifth Christmas. For the previous two years, I had watched my dad’s body and...