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Public Speaking

Taylor's general speaking topics include, but are not limited to:

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  • Patient advocacy and engagement in healthcare innovation

  • Surviving and thriving as a carrier of a genetic disease

  • The changing landscape of the 'carrier' experience

  • Genetics, family planning, and reproductive decision-making

  • Ethical patient engagement in reproductive genetics

  • Building trust in a digitally-connected patient community​​​

If you would like Taylor to speak at your event, or if you have other topics where you think she could add value, please reach out to discuss your ideas. Taylor welcomes opportunities to share her expertise and collaborate on topics across rare disease advocacy, patient engagement, genetics, reproductive health, and IVF with PGT-M.

Speaking Engagements:

Upcoming-

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Past -​

  • Sexual and Reproductive Health Issues in Rare Disease, National Organization for Rare Disorders Family Forum - Los Angeles | Jun 2024

  • Carrier panel, CTD/CCDS International Symposium - Paris, France | Sep 2023

  • Living as a young adult carrier of ALD, Alex TLC Community Weekend Conference - Birmingham, UK | Apr 2023

  • The Rare Voice: Patients, Family Caregivers, and Research, Rare Patient Voice RARE REV-inar - Virtual | Feb 2023

  • #RAREis Representation, Horizon Therapeutics - Virtual | Dec 2022

  • The Changing Landscape of the ‘ Carrier’ Experience, National Society for Genetic Counselors Annual Conference - Nashville, TN | Nov 2022

  • Remember The Carriers, Harmony 4 Hope Rare Storytellers - Virtual | Oct 2022

  • Finding and Retaining Volunteers, Global Genes RARE Patient Advocacy Summit - San Diego, CA | Sep 2022

  • An Unmet Need, CENTOGENE Rare Disease Day Conference - Virtual | Feb 2022

  • My ALD Life, Alcyone Therapeutics Lunch & Learn - Virtual | Feb 2022

  • Females with X-Linked Disorders: Not Just Carriers, Cooper Genomics Continuing Education Series - Virtual | Nov 2021

  • What Everyone Needs to Know Before Starting or Adding to Their Family, Access to Equitable Carrier Screening Coalition - Virtual | Oct 2021

  • Embracing Uncertainty - Rare Young Adults Leading for Change, Global Genes RARE Patient Advocacy Summit - Virtual | Sep 2021

  • VIP Event Host - Sanofi Genzyme TORCH Awards  - Virtual | Sep 2021

  • Using Social Media for Rare Disease Awareness & Content Building, Global Genes Foundation Alliance RARE Leader Lunch and Learn - Virtual | Aug 2021

  • Females with X-linked Disorders: Not Just Carriers, Illinois Society of Genetic Professionals Annual Symposium - Virtual | May 2021

  • Serving on a nonprofit Board of Directors as a young adult, YARR Leadership Academy - Virtual | Apr 2021

  • Engaging the Post-Millennial Generation, MassBio Patient Advocacy Summit - Virtual | Nov 2020

  • Young ALD Carriers, Alex TLC Community Weekend - Virtual | Nov 2020

  • Advocacy at Any Age, Rare New England Annual Conference - Virtual | Oct 2020

  • Females with X-Linked Disorders: Not Just Carriers, Michigan Association of Genetic Counselors (MAGC) Annual Education Conference - Virtual | Sep 2020

  • Patient Advocacy: A Day in the Life of an Adult Advocate, International Children's Advisory Network Virtual Summit - Virtual | Jul 2020

  • Female Carriers, United Leukodystrophy Foundation Family Conference - Virtual | May 2020

  • Converting Anxiety into Action: fundraising, volunteering, organizing, peer counseling, ALD Family Weekend Camp-At-Home - Virtual | May 2020

  • The Importance of Screening Carriers of X-linked Disorders, CENTOGENE Rare Disease Day - Berlin, Germany | Feb 2020

  • Family Planning: Decisions and Considerations, Global Genes RARE Patient Advocacy Summit - San Diego, CA | Sep 2019

  • Women as Carriers, United Leukodystrophy Foundation Scientific Symposium and Family Conference - Chicago, IL | Jun 2019

  • Advocating Online, NeuroConnect Summit - Rockville, MD | May 2019

  • Young Adult Advocacy, Ultragenyx Rare Family Day - Novato, CA | Apr 2019

  • The Importance of Carrier Testing, CENTOGENE Patient Advocacy Interaction with Orphan Drug Companies Conference - Rostock, Germany | Feb 2019

  • Women with ALD: Not Just Carriers, ALD Connect Annual Meeting & Patient Learning Academy - Philadelphia, PA | Nov 2018

  • The Next Generation of Rare Disease Advocates (keynote), NORD Rare Diseases & Orphan Products Breakthrough Summit - Washington, DC | Oct 2018

  • Pursuing Legislation That Matters, My City Med Rare Fair - Virtual | Sep 2018

  • A Conversation on Overcoming Life's Obstacles, Believe LTD Annual 'Powering Through' Conference - Portland, OR | Sep 2018

  • Rare Disease Advocacy for Young Adults, 2018 Issues & Action Hydrocephalus Conference - Washington, DC | Aug 2018

  • New Jersey Youth Making an Impact, #YesSheCanCampaign Sparkle Summit - Bordentown, NJ | Jun 2018

  • ’Culture Creators': The role of thought leaders, trendmakers, and trust builders in societal conversations on gene editing, CRISPRCon - Boston, MA | Jun 2018

  • Engaging the Next Generation of the Rare Disease Community, Rare Disease Day at NIH - Bethesda, MD | Mar 2018

  • Advocacy for Young Adults, EveryLife Foundation for Rare Diseases Rare Disease Legislative Advocates Legislative Conference - Washington, DC | Feb 2018

  • Young ALD Carriers, ALD Connect Annual Meeting & Patient Learning Academy - Bethesda, MD | Nov 2017

  • Young ALD Carriers, ALD Connect Annual Meeting & Patient Learning Academy - Boston, MA | Oct 2015

  • Fundraising for ALD Research, United Leukodystrophy Foundation Annual Conference - Baltimore, MD | Aug 2014

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