Public speaking
Taylor's speaking topics include, but are not limited to:
past speaking engagements:
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MassBio Patient Advocacy Summit - Virtual - "Engaging the Post-Millenial Generation" (November 2020)
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Alex TLC Community Weekend - Virtual - "Young ALD Carriers" (November 2020)
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Rare New England Annual Conference - Virtual - "Advocacy at Any Age" (October 2020)
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Michigan Association of Genetic Counselors (MAGC) Annual Education Conference - Virtual - "Females with X-Linked Disorders: Not Just Carriers" (September 2020)
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One Rare Experience - Virtual - "A book reading with Taylor Kane (August 2020)
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International Children's Advisory Network Virtual Summit - Virtual - "Patient Advocacy: A Day in the Life of an Adult Advocate" (July 2020)
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United Leukodystrophy Foundation Family Conference - Virtual - "Female Carriers" panel discussion (May 2020)
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ALD Family Weekend Camp-At-Home - Virtual - "Converting Anxiety into Action: fundraising, volunteering, organizing, peer counseling" panel discussion (May 2020)
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Centogene's Rare Disease Day - Berlin, Germany - "The Importance of Screening Carriers of X-linked Disorders" (February 2020)
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Global Genes' Rare Patient Advocacy Summit - San Diego, CA - "Family Planning: Decisions and Considerations" session (September 2019)
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United Leukodystrophy Foundation’s annual Scientific Symposium and Family Conference - Itasca, IL - "Women as Carriers" (June 2019)
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NeuroConnect Summit - Rockville, MD - "Advocating Online" (May 2019)
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Ultragenyx Rare Family Day - Novato, CA - "Young Adult Advocacy" (April 2019)
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Centogene’s Patient Advocacy Interaction with Orphan Drug Companies: Accelerating the Discovery and Development of Treatment in Rare Hereditary Disease Conference - Rostock, Germany - “The Importance of Carrier Testing” (February 2019)
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ALD Connect Annual Meeting & Patient Learning Academy - Philadelphia, PA - “Women with ALD: Not Just Carriers” (November 2018)
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NORD’s Rare Diseases & Orphan Products Breakthrough Summit - Washington, DC - “The Next Generation of Rare Disease Advocates” panel discussion (October 2018)
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My City Med’s Rare Fair - Virtual - “Pursuing Legislation That Matters (September 2018)
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Believe LTD’s Annual ‘Powering Through’ Conference - Portland, OR - “A Conversation on Overcoming Life’s Obstacles” panel discussion (September 2018)
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2018 Issues & Action Hydrocephalus Conference - Washington, DC - “Rare Disease Advocacy for Young Adults” (August 2018)
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Young Adult Representatives of RDLA - Newport Coast, CA - “Young Adult Advocacy for Rare Diseases” (July 2018)
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#YesSheCanCampaign Sparkle Summit - Bordentown, NJ - “New Jersey Youth Making an Impact” panel discussion (June 2018)
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CRISPRCon - Boston, MA - “‘Culture Creators’: The role of thought leaders, trendmakers, and trust builders in societal conversations on gene editing” panel discussion (June 2018)
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Rare Disease Day at National Institutes of Health - Bethesda, MD - “Engaging the Next Generation of the Rare Disease Community” panel discussion (March 2018)
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EveryLife Foundation for Rare Diseases - Rare Disease Legislative Advocates Conference - Washington, DC - “Advocacy for Young Adults” (February 2018)
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ALD Connect Annual Meeting & Patient Learning Academy - Bethesda, MD - “Young Adrenoleukodystrophy Carriers” (November 2017)
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ALD Connect Annual Meeting & Patient Learning Academy - Boston, MA - “Young Adrenoleukodystrophy Carriers” (October 2015)
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United Leukodystrophy Foundation Annual Conference - Baltimore, MD - “Fundraising for ALD Research” (August 2014)
UPCOMING speaking engagements:
Catch a glimpse...


